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Dear Friend,

 

This 'Thankful November' we share our heartfelt gratitude for the incredible support the SCN2A community receives from family and friends, scientists and researchers, clinicians and caregivers. Every day we are closer to having cures, but until then, every day there is another SCN2A warrior in crisis. Monday night we lost another child. We must speed up the fight!

 

Next week, 'Giving Tuesday' kicks off our end-of-year crusade to fund promising research and critical family support in 2023. Why wait? Give Today!

 

Every dollar donated in November and December

will be matched up to $30,000!!

 

BUILDING COMMUNITY

A HUGE shout out to all the wonderful Warrior Challenge teams who walked, ran, strolled and rolled to raise SCN2A awareness and $44,000 in October!! THANK YOU SO MUCH!! 

BUILDING RESEARCH

 

The FamilieSCN2A Foundation will exhibit at AES for the 8th year in a row!! We are proud to announce 2 poster presentations of the pre-published Clinical Trial Readiness Study data! Stop by our booth for details and to learn about our NEW grant opportunity.

Families: Please share this with your neurology team. We love to speak with clinicians who work with SCN2A-related disorders (SRDs).

 

 

Have you noticed?

As announced in our recently published Strategic Plan, we would like to share a new way of referring to SCN2A-related disorders. To simplify things, we will begin using 'SRD' to represent 'SCN2A-related disorder' moving forward. 

BUILDING RESOURCES

Click images for SCN2A holiday gift ideas!

 
BUILD RESOURCES, DONATE HERE

 

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The FamilieSCN2A Foundation
P.O. Box 82
East Longmeadow, MA 01028
United States

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