International SCN2A Awareness Day 2023 was absolutely AMAZING!
It was exciting to see SCN2A awareness spreading across the globe in countless ways: The debut of a documentary film; new research publications; donuts in purple, blue and green; and so many families and friends wearing SCN2A shirts and passing out bracelets! The community really stepped up to show the world what it’s like to live with SRDs and why they should care about it.
Take a look at all of the exciting things that happened on February 24, 2023
The debut of our short documentary film:
Two of our long time research collaborators, Al George and John Millichap (and others) published a paper: Epilepsy-associated SCN2A (NaV1.2) Variants Exhibit Diverse and Complex Functional Properties
Action Potential Grant opened on February 24th. LOI due April 1st
Three more states officially proclaimed February 24 as SCN2A Awareness Day!
Special thanks to the Norton-Cope and Beasley families in Arkansas, the Lewis family in Missouri, and the Dedon family in Louisiana! Along with CA, MA and PA we’ve only got 44 more to go. Great job advocating!!
THANK YOU for making International SCN2A Awareness Day a huge success!
Why is raising awareness so important?
Awareness leads to understanding of our unmet needs which leads to increased interest in doing and funding research which leads to more effective treatments and cures for ALL SRDs! Our mission is to accelerate that process and awareness is the first step.
The next step is funding our Annual Campaign, starting now…