Help us protect rare disease and cancer treatments by contacting your legislator today!

Ask your legislator to support the ORPHAN Cures Act by sending the template letter below.

First, fill out your information and hit NEXT. Then your representatives will auto populate with the letter. You can send the letter as it is, or you can edit the body of the message to add in:

• If you are a patient, survivor, thriver, caregiver, advocate, etc. 
• Share some of your story or why this is personally important to you. For example:
  • My father is living with [rare disease], for which there is currently no treatment or cure. A provision like this that slows progress to find a treatment or cure is unacceptable. We need to be making the path to developing treatments to save lives easier, not slower. 
  • I have neuropathy as a result of my breast cancer treatment which [impacts on your daily life or quality of life]. Having a cure or effecive treatment is very important to me. This provision lowers the chance of the development of a new treatment or cure and that is unaccpetable.
• Any other point that is important to you.

Then simply hit the SEND MESSAGE button and the letter will be sent to your House and Senate representatives.