Confronting Barriers to Care for Headache Disorders

Your voice has the power to make a meaningful difference in the lives of countless Americans living with headache disorders. We are calling on you to join us in advocating for critical healthcare reforms that can significantly improve access to care, reduce financial burdens, and ensure that patients receive the treatments they need promptly. This is an opportunity to share your unique perspective and experiences with your elected officials, emphasizing the real-world impact of Pharmacy Benefit Manager (PBM) reform, the HELP Copays Act (H.R. 830/S. 1375), and the Safe Step Act (H.R. 2630/S. 652). By personalizing the form letter provided below, you can help raise awareness about these issues and inspire change. Your advocacy matters, and together, we can create a brighter future for everyone affected by headache disorders. Thank you for taking action with the Alliance for Headache Disorders Advocacy.

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Dear [elected official],

I am writing as a concerned constituent to urge your support for crucial healthcare reforms that can significantly improve the lives of countless Americans, particularly those living with headache disorders. These policy changes center around Pharmacy Benefit Manager (PBM) reform and include the HELP Copays Act (H.R. 830/S. 1375) and the Safe Step Act (H.R. 2630/S. 652).

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Living with a headache disorder, I am deeply familiar on how critical it is to have access to treatments to treat and prevent attacks. Policies like step therapy can lead to agonizing delays in accessing essential treatments, resulting in adverse effects for patients like me, including in quality of life, work productivity, and overall well-being.

Over the last few legislative sessions, several PBM reform bills have emerged in both the House and Senate. These reforms target the transparency of drug and PBM pricing, pharmacy clawbacks, spread pricing, and drug rebates. While these bills may differ in their specifics, they share the common goal of ensuring that patients have access to affordable medications without unnecessary financial burdens.

The HELP Copays Act is of particular importance to patients like me. This legislation aims to protect patients by ensuring that payments made by third parties, such as copay assistance programs, are appropriately applied to a patient's plan deductible. By countering the detrimental effects of copay accumulators, this act can significantly reduce the exorbitant medication costs faced by patients and ensure they receive the care they need.

The Safe Step Act, H.R. 2630/S. 652, is another vital piece of legislation that addresses the issue of step therapy. This reform would require health insurers and group health plans to grant exceptions for step therapy protocols in medically appropriate cases. By streamlining the process and ensuring that patients receive the most suitable treatment without unnecessary delays, the Safe Step Act can enhance the quality of life for individuals like me who rely on consistent care.

I implore you to support PBM reform, the HELP Copays Act (H.R. 830/S. 1375), and the Safe Step Act (H.R. 2630/S. 652). These reforms have the potential to make healthcare more accessible, affordable, and equitable for all Americans, including those living with headache disorders. Your support for these measures will have a profound and positive impact on countless lives. I kindly request that you keep the interests and well-being of your constituents in mind when considering these essential reforms. Thank you for your dedication to improving our healthcare system and the lives of those you represent.

Sincerely, [Your information here]