Payer Forum - Thursday, June 12th, 9:00am - 5:00pm

SURF Incubator - SURF Cafe

999 3rd Ave Suite 700
Seattle, WA 98104

All stakeholders involved in rare diseases are crucial in accelerating innovation, research, and policy. In collaborating we can reduce cost, be efficient, and save lives. At the Payer Forum, we'll amplify the important role of insurance payers in the healthcare delivery ecosystem. We'll engage our payer colleagues in a rounding discussion about the implementation of genetic testing and cell and gene therapy with through the lens of the patient experience.

Seattle Rare Disease Fair - Friday, June 13th, 9:00a - 5:00p

Seattle Children's Research Institute

Building Cure

1920 Terry Ave 

Seattle, WA 98101

The Seattle Rare Disease Fair started in 2017. The goal was to unite all stakeholders in the rare disease community: payers, legislators, researchers, pharma, biotech, patients and their families. We'll discuss actions to move forward on the most pressing needs to the rare disease community and the policy considerations surrounding these efforts. 

Community Picnic - Saturday, June 14th: 11:00a - 3:00pm

Camp Patterson

11405 Silver Lake Road

Everett, WA 98208

The NW Rare Disease Coalition is hosting the Rare Dsease/Medically Complex/Special Needs Picnic. This will be a fun day for patients and their families. All are welcome!